Support Organisations

Some great suggestions from Rod Mackintosh from Malibu School 
The Independent Living Centre WA (ILC) provides information and advice, assessment, training, funding and hire services that enable Western Australians of all ages and abilities to live more independent and fulfilling lives. The ILC is a not-for-profit organisation staffed by experienced health professionals who aim to help people find solutions for living independently.

Carers WA is a non-profit, community based organisation and registered charity dedicated to improving the lives of the estimated 310,000 family carers living in Western Australia. Carers WA aim to enhance and promote carers health and wellbeing by focusing on their emotional and social support needs. Their services include the provision of specialist information and advice, resources, carer support through counselling, education / training, social support and carer advocacy and representation. Their resources section includes this very useful guide:

Kalparrin is a not-for-profit organisation available to support any family member or carer of a child with a disability or special need. They aim to help families of children with disabilities and special needs to carry their load by providing practical information and support, and connecting them with the services that they need. Kalparrin helps families connect with other families in similar situations through Parent Link, and to take time out through regular respite activities. Their resources section also includes a series of useful guides

This one is more general (i.e. not necessarily disability related)…
The Raising Children Network website ( is based on the philosophy that all children and families are individual and different. They provide scientifically validated information, translated into everyday language, to help parents and carers make decisions that work for them in their individual family circumstances.

And this one more specific (supporting people with complex communication needs) …
AGOSCI ( is an inclusive group interested in enhancing the participation of all people with complex communication needs. AGOSCI also aims to build the capacity of society to achieve their vision that people with complex communication needs participate fully in all aspects of life. AGOSCI’s membership includes individuals with complex communication needs, family and community members, teachers, speech pathologists and other professionals and has a brilliant list serve where members can have open discussions about all matters regarding Augmentative and Alternative Communication (

From John Exeter at Carson Street

As their welcome says “the Genetic and Rare Disease Network, GaRDN works to empower individuals and their families to reach positive health outcomes. We inform health professionals and the wider community on the perspectives and experiences of those affected by genetic and rare diseases. We connect key stakeholders and service providers with people affected by genetic and rare diseases”.
A directory of information on numerous genetic and rare diseases can be downloaded at:can be downloaded at:

A list of sites relative to a particular disability from Judy Gardner at Kensington Secondary and therefore need no further explanantion.


Downs Syndrome

Williams Syndrome